this girls parents should be shot.....

[DSTCHAOS]

Originally Posted by blueangel

I was careful to say that we don't know if she has it. I think people are too quick to judge other parents when they don't have all of the facts.

So does PW syndrome go undetected for years before it shows up on tests or something? Are the doctors and family not releasing this syndrome info to the public because they'd rather the parents be blamed or something? Or is it just a matter of inconsistent results of the hospitals' tests like what often happens with Lupus?

As already stated, this little girl has been to hospitals, has had television segments dedicated to her, and has a website. No mention of any disorder. However, there was a televised story on another little girl about a year ago who had this disorder, I believe. It was documented and that's the first thing they mentioned when the television show aired her story. Maybe this is the same little girl, I don't know.

The good thing is that she HAS lost 100 lbs. I hope she can make up for the damage the extra weight did.