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| Welcome to our newest member, aexjunior8242 |
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03-30-2013, 09:04 AM
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GreekChat Member
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Join Date: Aug 2003
Location: Michigan
Posts: 15,854
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She called me in tears again last night, around 11:30 pm because the ibuprofen wore off before she could get back to her dorm. I told her she's going to have to carry it around with her. This is heartbreaking. She is just so frustrated.
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03-30-2013, 09:08 AM
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Super Moderator
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Join Date: Sep 2003
Location: naples, florida
Posts: 18,697
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Oh Dee, I am so sorry for your daughter and for you.
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I live in Fantasyland and I have waterfront property.
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03-30-2013, 09:54 AM
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GreekChat Member
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Join Date: Aug 2011
Location: Shackled to my desk
Posts: 2,980
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Pain of any sort can be so difficult to get a diagnosis for. If there's no glaringly obvious injury or cause, doctors often brush it off. I hope Hypo gets better soon, but barring that, I also hope she can find a doctor willing to do the hard work to find the cause.
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Actually, amIblue? is a troublemaker. Go pick on her. --AZTheta
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03-30-2013, 08:17 PM
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GreekChat Member
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Join Date: Aug 2003
Location: Michigan
Posts: 15,854
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I haven't heard from her today. I think that's a good sign 
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04-01-2013, 10:47 AM
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GreekChat Member
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Join Date: Aug 2003
Location: Michigan
Posts: 15,854
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She called me yesterday after Googling her symptoms and was very concerned that she has meningitis or an aneurysm. I told her to stop Googling. She should be at health services now and the doctor is supposed to be setting her up with an eye specialist.
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04-01-2013, 11:25 AM
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GreekChat Member
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Join Date: Aug 2011
Location: Shackled to my desk
Posts: 2,980
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Quote:
Originally Posted by AGDee
She called me yesterday after Googling her symptoms and was very concerned that she has meningitis or an aneurysm. I told her to stop Googling. She should be at health services now and the doctor is supposed to be setting her up with an eye specialist.
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Googling health info can be dangerous! Hope she gets a good report!
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Actually, amIblue? is a troublemaker. Go pick on her. --AZTheta
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04-01-2013, 04:18 PM
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GreekChat Member
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Join Date: Aug 2003
Location: Michigan
Posts: 15,854
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She has been diagnosed with papilledma- swelling of the optic nerve, essentially, due to intracranial pressure. She's got an emergency appointment with a opthalmic neuorlogist tomorrow to try to determine the cause. There are many possibilities. She has contacted the disability office to work out some class accommodations at the urging of the health center doc. I may be heading to NYC soon.
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04-01-2013, 07:40 PM
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GreekChat Member
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Join Date: Jul 2001
Location: Georgia
Posts: 6,543
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Hope that it is a simple solution!! Prayers for you and H!
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Live With Purpose!. 
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04-01-2013, 07:51 PM
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Moderator
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Join Date: Feb 2002
Location: You're looking at Planet Earth
Posts: 6,554
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Oh boy, I hope she keeps getting some answers and the disability office can get her the support she needs for schoolwork now. Sending her much love and a big hug to you.
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"If you want to criticize my methods, fine. But you can keep your snide remarks to yourself. And while you're at it, don't criticize my methods." Rupert Giles, BtVS
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04-01-2013, 08:40 PM
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GreekChat Member
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Join Date: Aug 2011
Location: St. Louis, Missouri
Posts: 1,386
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Fingers crossed for Hypo! That's sort of scary!
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04-02-2013, 06:17 PM
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GreekChat Member
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Join Date: Aug 2011
Location: St. Louis, Missouri
Posts: 1,386
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How is Hypo?
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04-02-2013, 06:33 PM
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GreekChat Member
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Join Date: Aug 2003
Location: Michigan
Posts: 15,854
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We just got off the phone. She's had a busy day... neuro ophthalmologist appointment followed by blood work, then back to campus to meet with disability services and health services again, then went for an MRI, then to the pharmacy to drop off prescriptions and back to the MRI place to get a CD of her images. She liked the doctor she saw today a lot. I looked him up and he's got a very good reputation with lots of research in his field. She said he listed off her symptoms before she could tell him and he's pretty sure the increased intracranial pressure is due to the most benign cause of all the possibilities. She starts some meds tomorrow and the doctor will be calling her. She may need a spinal tap so they can measure the pressure and perhaps relieve some of it.
She's in much better spirits, feeling validated and like people are doing something to help her, so that's a big plus. I teased her that she went to a smart kid school and they filled up her brain with too much information too fast and she laughed at that. It is good to hear her laugh. Hopefully the prescription she picks up tomorrow gives her some relief quickly.
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04-02-2013, 08:33 PM
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GreekChat Member
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Join Date: Aug 2011
Location: St. Louis, Missouri
Posts: 1,386
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Oh, good. I'm glad it was relatively benign and that they're helping her.
I would have been a mess if it were my kid.
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04-02-2013, 08:48 PM
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GreekChat Member
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Join Date: Jan 2011
Location: Sweet Home Indiana
Posts: 2,089
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Glad to hear that her spirits are up and she has an idea of what's wrong.
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Sigma Kappa
One Heart One Way since 1874
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04-03-2013, 04:33 PM
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GreekChat Member
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Join Date: Aug 2003
Location: Michigan
Posts: 15,854
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The MRI came back clear so I just posted this on her Twitter:
https://www.youtube.com/watch?v=OaTO8_KNcuo
She will have a spinal tap next week which will provide some more relief, but she has been lifted from cognitive rest and put on meds to inhibit cerbralspinal fluid production to help alleviate the pressure.
Now she has a TON of homework to catch up on.
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