Health Advocacy...
When something like that happens to a patient, it takes strong advocacy to get information to make the best decision.
That takes knowledge. And it is very difficult to do when there are too many variables. I think that doctors are trying their best to make the best call they can, but sometimes their wrong.
But they do appreciate patients or loved ones of patients to start asking every question in the book. And if a doctor does not appreciate that, they are probably of the old guard and have issues that go beyond the best in health care.
When I had an emergency, I was fortunate to have my boss being a cardiologist and my advocate until my family could come a make decisions for me, if I was unable to. I also had several other cardiologists confirm their suspicions through what is called differentials (med school training). Then, I had the entire neurology team examine me.
Now, I do not have that kind of support--except through the kindness of strangers--but, I can ask the hard questions--everything I need to know to make the best decision for my health. And I do get on my medical doctors like white on rice. They will not pull on over on me.
I've had that happen to me before.
So who should have to say so for patient care when the patient is unable to be the advocate--the loved one (parents, S/O, health advocate). They can stabilize a patient for so long and make the best decision. Experts can be questioned from other institutions...
I might have to undergo a senstive procedure, you had better be dayum certain I will be asking several of my physcian friends what they think...
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