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  #601  
Old 04-03-2013, 07:04 PM
FSUZeta FSUZeta is offline
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Bless her (and your heart). How wonderful that the healthcare providers seem to be on the right path and that Hypo seems happier-I know that brings some relief to you.
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  #602  
Old 04-03-2013, 08:44 PM
Sciencewoman Sciencewoman is offline
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Hugs to Hypo!!
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  #603  
Old 04-04-2013, 06:44 PM
AGDee AGDee is offline
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I'm going to New York to be there with her for the spinal tap on Monday. I'll be driving Sunday, staying in her dorm Sunday night and Monday night, then driving back home Tuesday. They said she had to have someone with her. Her roommate said she might be able to do it. She was going to ask sorority sisters if not. I offered to come and the relief in her voice was evident. She needs some mothering.
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  #604  
Old 04-04-2013, 06:51 PM
Mizeree I2K Mizeree I2K is offline
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Originally Posted by AGDee View Post
I'm going to New York to be there with her for the spinal tap on Monday. I'll be driving Sunday, staying in her dorm Sunday night and Monday night, then driving back home Tuesday. They said she had to have someone with her. Her roommate said she might be able to do it. She was going to ask sorority sisters if not. I offered to come and the relief in her voice was evident. She needs some mothering.
Did she join the same sorority you joined?
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  #605  
Old 04-04-2013, 07:09 PM
AlwaysSAI AlwaysSAI is offline
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Quote:
Originally Posted by AGDee View Post
I'm going to New York to be there with her for the spinal tap on Monday. I'll be driving Sunday, staying in her dorm Sunday night and Monday night, then driving back home Tuesday. They said she had to have someone with her. Her roommate said she might be able to do it. She was going to ask sorority sisters if not. I offered to come and the relief in her voice was evident. She needs some mothering.
Best of luck, Dee! Safe travels to NYC. As a 21 year old college student, I woke up from oral surgery begging for my momma. A momma's hug cannot be replicated! It will do Hypo good to get some genuine mothering!

I will be thinking of you and Hypo!

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Did she join the same sorority you joined?
No. AGDee = Alpha Gamma Delta & Hypo = Alpha Chi Omega
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Last edited by AlwaysSAI; 04-04-2013 at 07:12 PM.
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  #606  
Old 04-05-2013, 09:44 AM
amIblue? amIblue? is offline
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Originally Posted by AGDee View Post
I'm going to New York to be there with her for the spinal tap on Monday. I'll be driving Sunday, staying in her dorm Sunday night and Monday night, then driving back home Tuesday. They said she had to have someone with her. Her roommate said she might be able to do it. She was going to ask sorority sisters if not. I offered to come and the relief in her voice was evident. She needs some mothering.
Yes, a girl definitely needs her mom! Hope everything goes well and that she is better soon!
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  #607  
Old 04-05-2013, 10:01 AM
AOII Angel AOII Angel is offline
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So glad that Hypo had a caring physician who didn't take a simple answer for her symptoms. ERs are notorious for turfing people without doing an appropriate evaluation...they are too busy with all the inappropriate visits forced upon them with the way our health care system works. The story of her doctor sitting outside her dorm waiting for her makes me proud to be a physician. I hope the meds are improving Hypo's symptoms...the spinal tap should really help. Poor baby. I bet her head was hurting!
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  #608  
Old 04-05-2013, 02:04 PM
AZTheta AZTheta is offline
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Thank you, Dee, for sharing with us. FWIW, I will continue to keep Hypo wrapped in light and prayer. Having an answer is huge (and it is "all in her head" - you can tell her that I said that as a joke, please. I know there's more to it, and I'm just being a little silly in relief). Praying also for the doctors to take the best care of her, and for safe travels for you.
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  #609  
Old 04-05-2013, 02:06 PM
Beryana Beryana is offline
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Originally Posted by AGDee View Post
We just got off the phone. She's had a busy day... neuro ophthalmologist appointment followed by blood work, then back to campus to meet with disability services and health services again, then went for an MRI, then to the pharmacy to drop off prescriptions and back to the MRI place to get a CD of her images. She liked the doctor she saw today a lot. I looked him up and he's got a very good reputation with lots of research in his field. She said he listed off her symptoms before she could tell him and he's pretty sure the increased intracranial pressure is due to the most benign cause of all the possibilities. She starts some meds tomorrow and the doctor will be calling her. She may need a spinal tap so they can measure the pressure and perhaps relieve some of it.

She's in much better spirits, feeling validated and like people are doing something to help her, so that's a big plus. I teased her that she went to a smart kid school and they filled up her brain with too much information too fast and she laughed at that. It is good to hear her laugh. Hopefully the prescription she picks up tomorrow gives her some relief quickly.
As someone who has been through all this twice in the US and now again in the UK (kept coming back over the past 5 years) - if is is on the same meds I'm on, they should help. The spinal tap will help out IMMEDIATELY but the day after is HORRID when the spinal fluid builds back up again! My optometrist was the first to diagnose and then the neurologist sent me to the ophthalmologist after the MRI and spinal tap came back clear.
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  #610  
Old 04-05-2013, 11:16 PM
AGDee AGDee is offline
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It is my understanding that she's on a medication that reduces how much CSF she makes. She said she is feeling less pressure in her head already, so hopefully she won't get a huge rebound like that after the spinal tap.
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  #611  
Old 04-06-2013, 12:07 AM
AlwaysSAI AlwaysSAI is offline
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Fixed. Disregard.
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Last edited by AlwaysSAI; 04-26-2013 at 05:45 PM.
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  #612  
Old 04-06-2013, 03:22 AM
StealthMode StealthMode is offline
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Thank you so much for updating us, Dee!!! I need to keep up on this thread more often--so glad hypo is okay and that you're going to see your girl!
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  #613  
Old 04-06-2013, 09:38 AM
maconmagnolia maconmagnolia is offline
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I feel Hypo's pain. I broke my arm on my last day of spring break and had to miss a week of school because of surgery, and now I'm working my butt off to catch up. I hope she feels better soon and stays stress-free!
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  #614  
Old 04-06-2013, 01:56 PM
AGDee AGDee is offline
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I decided to blow the budget and get a hotel room. The thought of me, her and her roommate in a dorm room with her having to be flat on her back for 12 hours was too much. I also wouldn't be able to come and go without her with me so getting food, etc. was going to be a hassle.
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  #615  
Old 04-06-2013, 02:25 PM
Sciencewoman Sciencewoman is offline
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I'm sure you'll be much more comfortable in a hotel room. I hope everything goes well! I know she's happy to have you there, and you'll be able to make connections with the doctor(s).
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