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One of my aunts who just turned 50 last summer, has a serious form of SCA. So, it doesn't have to be a death sentence. When she was little, my grandmother used to spoil the crap out of her. However, she rebelled, unlike ray-ray. When my grandmother wanted her to stay home, my aunt would fake NOT being sick, so she could go to school. She did miss a lot of school when she was genuinely sick. Because of that she was very behind, especially in her high school and college years.
I think holding him back would hurt him at all, he 's only going to get further and further behind if he doesn't.
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