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  #1  
Old 07-07-2020, 11:50 AM
navane navane is offline
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Quote:
Originally Posted by DGTess View Post
I have a cousin who joined AXiD in part *because* of their affiliation with AS. Her sister is severely autistic.

Am I mistaken in the impression those opposing AS do so because it doesn't do enough for individuals? Instead focusing on research? Is that a bad thing? It may not be what some want, but I don't see it as a bad thing.

What am I missing?

A few posts above, SWTXBelle posted a link to a website which describes some of the issues people have with the organization.
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  #2  
Old 07-07-2020, 12:36 PM
naraht naraht is offline
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Autism Speaks...

Arguably, the *original* Autism Speaks founding setup by Bob and Susan Wright wasn't nearly as offensive.

However, the mergers with National Alliance for Autism Research and (even more so Cure Autism Now) have taken an organization that had a general concept of helping those with Autism to one devoted to finding a cure including a pre-natal test (allowing for selective abortions). The organization views Autism as only those with severe impact (such as those who are non-verbal, seizures etc.)), those whose additional care will in their advertising lead to such severe impact on the family that things like divorces will be caused.

https://en.wikipedia.org/wiki/Contro...cy_initiatives is a decent start on the difference between the Pathology paradigm and the Neurodiversity paradigm.
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Old 07-07-2020, 03:55 PM
DGTess DGTess is offline
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Quote:
Originally Posted by navane View Post
A few posts above, SWTXBelle posted a link to a website which describes some of the issues people have with the organization.
Yeah, that's the post that caused my question. The first three points are simply "they don't do enough for individuals". The fourth is their marketing, which *in this woman's opinion* is disgusting. I've not seen it, and realize this is only one person.

No biggie; I was just curious. Just trying to understand.
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  #4  
Old 07-21-2020, 11:58 PM
jolene jolene is offline
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I've never met a parent of an autistic child who didn't wish there was something to help. My nephew is autistic. Highly intelligent (extremely, but I'm his aunt so I'm partial), but needs resources. Alpha Xi does not view it as a disease. AS seeks to research and help those who are on the spectrum. Sorry, I'm close to this issue. He is important to me and as an AXiD, it makes me even more passionate about AS. And these sisters are leaving over an imagined slight.
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  #5  
Old 07-22-2020, 09:42 AM
naraht naraht is offline
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Originally Posted by jolene View Post
I've never met a parent of an autistic child who didn't wish there was something to help. My nephew is autistic. Highly intelligent (extremely, but I'm his aunt so I'm partial), but needs resources. Alpha Xi does not view it as a disease. AS seeks to research and help those who are on the spectrum. Sorry, I'm close to this issue. He is important to me and as an AXiD, it makes me even more passionate about AS. And these sisters are leaving over an imagined slight.
Whether or not Alpha Xi Delta views it as a disease, the issue is whether AS does...

Help yes. And that's 4% of what they do. Far more goes into making sure that more autistic people aren't born and that they are "cured".

http://www.rootpolicy.com/wp-content...lor_2017-1.pdf

And although the thread has turned to the discussion of AS, it has been pointed out that that hasn't been shown to be the reason that they are leaving.
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  #6  
Old 07-30-2020, 09:52 PM
SWTXBelle SWTXBelle is offline
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Video on Autism Speaks -
https://www.youtube.com/watch?v=5Va_XXoD5LE
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Old 08-14-2020, 02:31 PM
ASTalumna06 ASTalumna06 is offline
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I know this has nothing to do with the thread, but we got off on a tangent about autism, and I'm only here to say that everyone should watch the documentary 'The Speed Cubers' on Netflix.
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Old 08-27-2020, 01:18 AM
JonInKC JonInKC is offline
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They should drop out of school because it allows Greek life to exist.
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Old 08-27-2020, 08:44 AM
tcsparky tcsparky is offline
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I will admit that I am struggling to see their reasoning. If the organisation in which they are member does not meet their needs, then they most certainly should drop their membership in that organisation. I do not understand the mindset that says if an organisation is not meeting their needs, then that organisation should be destroyed. I know that cancel culture is the current trend, but the sense of entitlement that these women seem to have is mind-boggling. I just do not understand the mindset that says "destroy anything that I do not 100% approve of."
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  #10  
Old 08-27-2020, 04:45 PM
Cheerio Cheerio is offline
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Originally Posted by tcsparky View Post
I will admit that I am struggling to see their reasoning. If the organisation in which they are member does not meet their needs, then they most certainly should drop their membership in that organisation. I do not understand the mindset that says if an organisation is not meeting their needs, then that organisation should be destroyed. I know that cancel culture is the current trend, but the sense of entitlement that these women seem to have is mind-boggling. I just do not understand the mindset that says "destroy anything that I do not 100% approve of."
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  #11  
Old 08-27-2020, 06:16 PM
thetalady thetalady is offline
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Originally Posted by tcsparky View Post
I will admit that I am struggling to see their reasoning. If the organisation in which they are member does not meet their needs, then they most certainly should drop their membership in that organisation. I do not understand the mindset that says if an organisation is not meeting their needs, then that organisation should be destroyed. I know that cancel culture is the current trend, but the sense of entitlement that these women seem to have is mind-boggling. I just do not understand the mindset that says "destroy anything that I do not 100% approve of."
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  #12  
Old 08-27-2020, 09:31 PM
*winter* *winter* is offline
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They should drop out of school because it allows Greek life to exist.
“Like” this post!
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  #13  
Old 06-14-2021, 03:51 PM
Cookiez17 Cookiez17 is offline
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Well somewhat related but Alpha Xi Delta has ended their partnership with Autism Speaks. Their philanthropy for now is called the Kindly Hearts Campaign, which will help areas that were really affected by COVID.

https://www.alphaxidelta.org/stateme...nthropic-focus
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  #14  
Old 06-15-2021, 02:09 PM
naraht naraht is offline
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Originally Posted by Cookiez17 View Post
Well somewhat related but Alpha Xi Delta has ended their partnership with Autism Speaks. Their philanthropy for now is called the Kindly Hearts Campaign, which will help areas that were really affected by COVID.

https://www.alphaxidelta.org/stateme...nthropic-focus
Autism speaks struck me as sort of an odd choice for a national service partnerships because there are definitely those who loudly disagree with the group. While I know there are concerns with "vanilla", I do think that it makes it easier when a national philanthropy isn't one the mainstream media is willing to give time to those who oppose it.
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