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Once I read the article for myself, I didn't find her wish to be weird AT ALL.
She and her boyfriend who proposed last summer, want to be together and IF she weren't going to dye, hopefully they would end up together. She is realistic enough to know that because of her illness, a wedding somewhere down the line simply wasn't going to be possible.
As for having a committment ceremony, due to insurance issues, sounds reasonable to me also.
I have CHF, to the tune of 90% heart failure. And at this time, I probably wouldn't MARRY a man without a great insurance plan, we'd be broke...
I commend her for knowing what she wanted. Some children choose to have state of the art electronic set ups, huge sweet 16s, really special vacation. She wanted to experience a wedding to her true love as she knows it right now.
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