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Old 12-17-2004, 07:34 AM
AGDee AGDee is offline
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Join Date: Aug 2003
Location: Michigan
Posts: 15,863
I don't know how I missed this thread the first time around. I have Crohn's Disease and have posted about it numerous times before.

The foods that trigger Crohn's are very individual. For me, it's nuts, chocolate, onions and alcohol that can really spike a flare. However, when I am in total remission, I can eat anything I want, and this is what my gastroenterologist says too. When in a bad flare, the number of foods I can't eat grows tremendously. Some people have a hard time with nightshade veggies (tomatoes, potatoes, onions). It varies greatly. CCFA claims that no research has ever found a diet link to Crohn's.

I was initially mis-diagnosed with IBS by my primary care doc, but after trying every IBS med out there, she finally sent me to a GI who did TESTS and found out it was Crohn's. This was after living on popsicles and jello for 5 months and losing 65 pounds. After trying every Crohn's med then, nothing could repair the area that was inflamed and damaged so I had a re-section of the terminal ileum and ascending colon. I went into remission for about a year when I started to have trouble again. After blood tests to find out if my meds were at a therapeutic level, we found that my levels were low and increased my meds. I'm now pretty much in remission again. It's hard to remember to take my meds when I'm feeling good (because I take so many pills a day!) so then I backslide and then get good about taking the pills again (not TEH PILLS). I also had to get Vitamin B12 shots but now I have this cool nasal gel that I inhale for my B12 and it's more convenient. The sad thing is, when I was trying to lose weight (and succeeding), it turned out it was because of the Crohn's. As soon as I went back into remission, I gained a bunch of weight again, eating the same foods. You absorb so little when in a flare that your metabolism gets all screwed up. And I actually thought my dieting was paying off then! UGH!

Dee
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