Quote:
Originally Posted by AGDee
We just got off the phone. She's had a busy day... neuro ophthalmologist appointment followed by blood work, then back to campus to meet with disability services and health services again, then went for an MRI, then to the pharmacy to drop off prescriptions and back to the MRI place to get a CD of her images. She liked the doctor she saw today a lot. I looked him up and he's got a very good reputation with lots of research in his field. She said he listed off her symptoms before she could tell him and he's pretty sure the increased intracranial pressure is due to the most benign cause of all the possibilities. She starts some meds tomorrow and the doctor will be calling her. She may need a spinal tap so they can measure the pressure and perhaps relieve some of it.
She's in much better spirits, feeling validated and like people are doing something to help her, so that's a big plus. I teased her that she went to a smart kid school and they filled up her brain with too much information too fast and she laughed at that. It is good to hear her laugh. Hopefully the prescription she picks up tomorrow gives her some relief quickly.
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As someone who has been through all this twice in the US and now again in the UK (kept coming back over the past 5 years) - if is is on the same meds I'm on, they should help. The spinal tap will help out IMMEDIATELY but the day after is HORRID when the spinal fluid builds back up again! My optometrist was the first to diagnose and then the neurologist sent me to the ophthalmologist after the MRI and spinal tap came back clear.