Quote:
Originally Posted by REE1993
hijack/
I just wanted to say thank you for supporting the CF Foundation. I have CF, and I have to say, without the CFF to procure research grants, recruit volunteers, and spread awareness of CF, I am not sure that there would be the number and depth of strides made in genetic research and concrurrent therapies to prolong and improve the lives of people with CF.
When I was diagnosed at 1 year of age, my parents were told that I would be lucky to see 5 years old. Then it became 10 years. Then 18...
I am proud to say that I am an old lady now (lol, 35 11/12). Still below the "median life expectancy". I can't wait until I pass that number...but every year it goes up!
Thank you once again, and please do share your commitment to fundraising and/or awareness with the CFF and your local newspapers in terms of Press Releases. Include your University and your HQ on your press list. You are doing something wonderful here, and deserve recognition.
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You're welcome! :-)
We also enjoy the CF walk every year... hoping to gather a larger team for 2008!! :-)