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By Popular Demand An Update
I saw another cornea specialist last Tuesday since mine was on his honeymoon. I had seen him early in my treatment in July. He said that my eyes are healing nicely, and right now he sees no reason for my vision to change permanently. I just need to be patient and use my eye drops. I am using three drops every other hour about 15 to 20 minutes apart which adds up to about 24 drops per day. I also have to dilate my right pupil every other night so the inflammation won't cause any permanent damage.
With correction, my vision in my left eye is about 20/25, but my right eye fluctuates between 20/30 and 20/35 which might be a result of the dilating drops or the inflammation. I was able to get a prescription for eye glasses which is the same prescription that I have had since I was 10 or 11. It looks a little blurry, but it is the best that they could get at this stage in my condition. Fortunately, I have very little pain. I am still sensitive to light especially after I use my drops, but sunglasses help. I really love the fact that sunset is getting earlier every day. Rainy days are the best for my eyes.
This cornea specialist wants to get a microbiologist involved in my treatment. In January they will take more cultures and see what progress I have made and if I still have acanthamoeba. The problem is this parasite can only be seen with a confocal microscope, and even that is not 100% accurate. I already had that test once, and it was inconclusive so a microbiologist is the way to go. I hope that this will be out of me in January.
The worst part about this is how expensive the medicine is. Most of my drops are chemicals specially compounded for me. They don't have FDA approval so they aren't covered by insurance. I have spent about $4,000 so far and expect to spend at least twice that before this is over. It just makes me wonder what happens to people who cannot afford this treatment.
So now on to important things. I plan to go shopping for eyeglasses this week. I want to get something cute and fashionable and not too expensive since my prescription still might change. Any suggestions about where to go and what to get?
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