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so dont watch that video at work. :( that is so sad. i feel so much for her parents, and for her, too. shes doing so well and i can only hope she continues to do so. good luck and god bless to her and her family :(
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awww poor little girl. you know this society isn't kind either so i feel bad for all the cruel people she has to come across in her life.
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Just recently, there was something on the Discovery channel (I think) about Treachers-Collins syndrome. One of the young ladies profiled was in medical school. Keep you eyes and ears open for it; I'm sure it'll be on again soon.
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My brother had a really rare problem... 3 sets of his 15th chromosome
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